The Continuing Journey of My Child with Albright’s Hereditary Osteodystrophy (AHO) and Autism
The Tristan Project is the continued saga of my beautiful son Tristan. My child Tristan was diagnosed at seven months of age with a rare genetic metabolic disorder called Albright’s Hereditary Osteodystropy (AHO), which can be associated with bone growth within his skin (osteoma cutis), developmental (severe speech delays associated with PDD-NOS, a form of Autism Spectrum Disorder (ASD)) and growth delays as well as in his case the relatively rare metabolic disorder called pseudohypoparathyroidism type 1a. The links below are updates I provided to family and friends throughout the years. I provide them here for others who discover themselves along a similar pathway.